CLOVIS,(who also have  severe hemophilia A)when 15 , did that drawing:  Super HEMO  to represent the wish of a group of youngsters with severe hemophilia A and B: this super-hero would be helping other people, protecting them: he would have his own protections devices (in knees and elbows) a Platelet-gun to help healing wounds, a fibrin net to catch the bad guys and factor supplies a-go-go in his belt!

Today he is 29, he is working, in love,  have friends, manages  his right  knee …he lives his life as a whole…with a smile, with the same spirit when i met him as a 10 years old boy! 


Clovis, quando 15, desenhou este Super herói , o SUPER HEMO para representar o desejo de seus coleguinhas do grupo no Hospital das Clínicas: estávamos imaginando como seria ser um super herói com hemofilia!!! Ele seria um cara que ajuda!  útil para sociedade, com recursos de proteção tanto para ele (joelheiras e cotoveleiras e fator na cintura a vontade) como para os outros: munição de Plaquetas para ajudar a sarar rápido uma ferida, uma rede de fibrina para pegar os maus!

Hoje Cloves tem 29 anos, trabalha, ama e dedica tempo para melhorar seu joelho com artropatía. Ele  vive a VIDA   como um todo. Sempre mantendo o sorriso que lhe é típico quando o conheci ainda criança….

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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