At the center of hemophilia, we have cases of kids and adults with  inhibitors  which is another aspect of  living with hemophilia.  20% more or less of the population can develop inhibitors against factor 8 or 9.  Remember what I wrote in my monograph “psychosocial care for people with hemophilia….”?  As care givers and parents we will discover HOW each son develops his hemophilia. Well, it is about how to cope with so many details and facts that arouse through the process of living .

Just to explain in a simple way: if an hemophiliac has “inhibitors” it means that his blood doesn’t clot with the regular factor 8 or 9 replacement the immune system has reacted against the factor and see it as a strange ” dangerous” presence in blood. So, the solution to first stop the bleeding is : to use another thing called BY PASS AGENT that helps clotting and solve the bleeding problem.

Another intervention is to eradicate the inhibitors and this can be done successfully with the called Immune tolerance inductive therapy: a big amount of factor  is delivered into the blood stream making the immune system get use to the factor  and no more reacting against. So, most of the kids who developed inhibitors will have  big chances to not have them with the treatment available.

IMMUNE TOLERANCE TREATMENT AND BY PASS AGENT  : to be continued...these are just drafts!!!

IMMUNE TOLERANCE TREATMENT AND BY PASS AGENT : to be continued…these are just drafts!!!


Nowadays, we have specific fator replacement and we can put a catheter to relief the tiny and fragile veins of our babies.

The emotional aspect of it is ….acceptance and have a  pro active  attitude ! I can accept i have something not functioning in my body and in my mind (which are so much connected and mixtured) and after acceptance quit or face it gently and with courage

I am almost finishing the preparation of flash cards for INHIBITORS and topics related! IN-HEMOACTION 🙂 

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. […] Here is the original: Having hemophilia with Inhibitors / Hemofilia com inibidor … […]

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