In  a group therapy  with  kids (8-10) in our Hemophilia center  on  the topic Fears, I was glad to see that none of them mentioned being afraid of infusing Factor, or afraid  of needles.. they just talked about common fears  for their ages…snakes, spiders, monsters 🙂

I guess the team work with our nurses, social worker and myself along with the moms during the first stages of Educating for Self-infusion both for the  Prophylaxis program or just the Factor dose used at home…have brought good results!   self-infusion of Factor

Quando trabalhei com o grupo das criancas sobre medos, percebi com alegria que nenhum mencionou ter medo de agulha ou de infundir o fator! O trabalho multi-disciplinar para a Educação para Profilaxia ou para o uso da DDU está dando certo. As mães  e  os pais estão cada vez mais participativos e felizes de ver que existem  maneiras  de criar filhos autônomos  que sabem desde cedo  se cuidar e  se tratar. Estamos trabalhando bem acho :)!

O centro de hemofilia é uma segunda casa para os pais e seus filhos; a equipe toda está motivada para orientar e treinar desde as primeiras visitas. Ver e acompanhar o crescimento dos pequenos é um privilégio.

Each time I have to make some blood tests or receive a shot…i must confess that I have a flashback of my childhood where they used to grab me and force me ! maybe that’s why I like to PREVENT and explain everything so carefully, with details with kids, for example  showing them the stuff we use at the center, allowing them to describe the sensations they have….

and it worked well for the children with hemophilia, with mine and with me! 🙂

I really believe that when people try (sometimes with the best intentions) to hide information, or try to trick a child to face something not pleasant…it is worse!

I remember reading years ago Kelly ‘s wonderful book “Raising a child with hemophilia” and  who believes that no baby should receive more than few tries to find the vein…it is better to stop and start later or with another nurse.

the runner

 

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

3 responses »

  1. […] View original post here: AUTO-INFUSÃO contra O MEDO DAS AGULHAS/ SELF-INFUSION vs FEAR OF NEEDLES […]

  2. Watch the video of the Pimenta’s ! one of the latest posts, under group therapy or children at Hospital das Clinicas. one of the relaxing moments of life..laughing

  3. Daiane Rizieli Voks says:

    Oi Frederica!

    Adoro teu blog, acesso todos os dias e sempre aprendo muito.

    Um grande abraço.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s