It is possible to be what you are and  exercise different roles.Several questions from the audience from professionals such as nurse, pediatric hematologist and physiotherapist were addressed to me because I am a health care professional working in a multidisciplinary team. HCPs are more and more interested to know how to manage communication and information through the use of groups in FBook or messages.I said that i saw myself as a bridge between the young man or a parent  and the hemophilia center. I create bonds with who wants to contact them and I promote self knowledge, self management with the help of the care team. It was very interesting meeting!!! 🙂 

Blood4Coping with hemophilia with the use of images

Blood4
Coping with hemophilia with the use of images

 

É possível ser o que a gente é e exercer vários papéis. Um interessante evento aconteceu em Paris, organizado pela Bayer, onde se reuniram vários blogueiros para falar sobre Media social, internet e de que forma podem e estão contribuindo para a comunidade de hemofilia. Vide o “convite” . Várias perguntas da plateia foram  dirigidas a mim que era a única profissional da saúde que tinha um blog; as perguntas eram sempre dúvidas de outros profissionais como enfermeiras, fisioterapeutas  e pediatra hematologista que queriam saber de que foram manejar o tema da comunicacão via grupos no Facebook, ou mensagens de texto. MUITOS DESAFIOS! eu disse que nós estamos para ser a PONTE , facilitar o diálogo entre o Centro de atendimento e o menino que tem hemofilia, estamos para se comunicar criando vínculos. PODEMOS PROPORCIONAR  informacões  mas não tratamento.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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