Este projeto começou em 2011 onde foi apresentado em Kyoto  no Pre Congresso do ISTH. Os enfermeiros acharam barbara a idéia de ter, como para hemofilia existe HEMOACTION, uma cartas explicativas para pessoas em tratamento com anti-coagulantes…nasceu o P-TET.

Agora estamos na fase de Validação, colaborando com experts no Canada, estamos nos preparando para aplicar as cartas e seu manual a vários pacientes e testá-las, analisar quais requerem ser modificadas, melhoradas etc…é um processo muito interessante!

At the  58TH SCIENTIFIC  AND STANDARDIZED COMMITTEE MEETING OF THE ISTH, OUR POSTER on P-TET (Pediatric Thrombosis Educational Tool )

The on-going project was received with great interest and other country proposed to experiment the flashcards and collaborate with our study/project!Now we are in the phase of Validation, cross cultural one! we will submit the cards to a cognitive debriefing process in order to improve the tool and adapt it to the population we wish to work with. very interesting process.

several important items of treatment process ! promoting self management and care

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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