U como UNIÃO : ” Agrupados física ou mentalmente, reunidos, juntos…”
É assim que devemos ser os que trabalham juntos, os que vivem juntos…
Unirse para conseguir mais qualidade de atendimento, mais bem estar para nossos pacientes…
Os próprios portadores da hemofilia teríam que se comunicar mais, pedir por mais unidades de Fator do governo, unirse para boas causas. BOAS NOTICIAS: tudo que se faz com dedicação e perseverança se consegue: BRASIL TEM AGORA A PROFILAXIA PRIMARIA E O PROGRAMA DE IMUNOTOLERÂNCIA PARA TODAS AS CRIANÇAS COM HEMOFILIA GRAVE.(COMEÇO DE 2012)
ALEM DISSO O BRASIL VEM ADOTANDO DESDE mais de 15 anos o estilo multidisciplinar de atendimento: assim as familias e as crianças foram crescendo se sentindo junto a equipe, unidos para melhorar o tratamento e consequentemente sua vida.
U LIKE UNDERSTAND: ” grasp the meaning of words, a situation, a person….”
For a family with hemophilia , understanding what a blood clotting disorder will mean in they day to day life is a long and complex process. Each child is unique in his way to manifest the symptoms, is unique in his understanding of hemophilia. So it is up to us family members and care agents to provide clear informations about hemophilia BUT ALSO to stand by him in order TO BUILT A PERSONALITY where he can improve his natural skills and deal with his possible limitations with courage and criativity. I invite you to read the monograph i wrote PSYCHOSOCIAL CARE FOR PEOPLE WITH HEMOPHILIA for the WFH.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com
Now, HERO is in Brazil! soon the results will be available.
2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families"
On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)
BLOOD 4 