Erik’s 5th birthday today :)…last Thursday i saw him at the hemophilia center with his mom and “bachan” grandma in Japanese. I met the family since his first month and this is one more young family that struggles to give their kid the best quality of love and care. Erik’s mother was very young when he was born and her and the husband had to rely on bachan’s support and grandpa’s too! at the beginning our psychosocial service gave a good hand in orienting, helping the family members to educate themselves and learn about family dynamics and hemophilia care.Each one had an important role. NOWADAYS , when we meet we can check together all the good results of this consciousness. The best gift for all is to watch an almost 5 years boy enjoying playing and talking about the Hemoaction cards describing Blood, treatment (factor), first aids (his favorite with the turtle)…and not afraid of taking his infusion when needed. Parabéns Erik! te ver assim concentrado e querendo mostrar o que sabes sobre os desenhos nas cartas foi emocionante!! você esta crescendo muito bem e tua família também….:)

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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