E  like END: ” Final part of something, finish, term of an event or situation…”

                                                                      THE    END

When we are in Pain, we ask : when it is going to stop, to end? when we suffer  with our emotions (love, jealousy, envy, rage…frustration…) we want to end with them as soon as possible! and of course the opposite exists: good and happy moments are wanted to be forever!!!(I exaggerated :)) … at least we want them to last for a long time.

The end of  pain in an emotional conflict can be solved by the help of a counsellor or psychotherapist who can offer support and guidance. Other help comes from meditation, praying, exercises that relax such as listening or playing a musical instrument, dancing…just to give other alternatives.

The end of a bleeding episode is determined when:

There is  possibility to move, after being recovered with the help of factor replacement and sessions of physiotherapy,  when the person is able to do things normally without pain. All the process  is usually monitored by the team of doctors at the center of hemophilia.

———————-

E  como ESCONDER: ” não mostrar, não dizer, sumir com…”

Muitos meninos com hemofilia e adolescentes também escondem dos seus pais e dos responsáveis na escola que se machucaram. ISTO NÃO  É  NADA BOM para sua saúde porque o menino terá um sangramento sem atendimento rápido, sentirá muita dor e se tiver um sangramento na articulação e não recebe rápido o fator, ele poderá ter seqüelas na mesma.

As crianças ESCONDEM  porque elas têm:

– Medo de serem repreendidos pelos pais (portanto é importante que os pais compreendam o quê aconteceu e incentivem o diálogo)

(a conhecida  pergunta “PORQUÊ teve que se machucar?” é geralmente difícil de responder….as crianças até uns 9 anos mais ou menos têm tendência a jogar  sem entender direito as consequências)

– Receio de provocar incômodo aos pais fazendo um deles levaram ao hospital e deixar de fazer o que estava fazendo. (as crianças e os jovens se sentem culpadas…não fazem a propósito..querem brincar, se divertir…aprenderão pouco a pouco a conhecer seus limites )

– Medo de não poder brincar mais como estavam fazendo.( proibir uma criança de brincar não é a solução…brincar é um sinal de saúde)

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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