Q like Question: ” form of expression in speech or writing that requests an answer from somebody”

This word has probably a link with another word called “quest”? which means the search for knowledge or happiness.

A child will always seek for answers: why can’t I play soccer? why do I bleed so often and have to go to the hospital? what’s hemophilia? and in these questions parents may experience difficulties in explaining. Even if you don’t know HOW to explain, you may tell your son:” I don’t really know how to explain yet, but I will search for you the answer….let’s do it together…let’s learn why you better choose another activity and not soccer!”…

Q como Questionar :” perguntar, duvidar de alguma decisão ou atitude”

As crianças sempre fazem perguntas e questionam as regras dos pais.

Na hemofilia é importante saber explicar Porquê não pode praticar por exemplo futebol, ou basquete.

A resposta do Não, não pode ser somente porque ele tem hemofilia. É Importante explicar o qué acontece dentro de seu corpo quando ele se expõe à atividades que vão lhe provocar batidas na canela, ou um chute na coxa por outro colega! E MUITO IMPORTANTE OFERECER OUTRAS OPÇÕES DE ATIVIDADES .

Então, se o jovem sabe que DEMORA MESMO para “parar ou estancar o sangramento” e que precisa avisar ao responsável que se ele se  feriu, ele vai tomar o fator rapidamente. Deoois ele  irá aprender a escolher a melhor atividade  para si. Os pais têm que aceitar que os filhos as vezes se rebelam, expressam sua frustração, e fiquem tristes. Faz parte da aceitação e aprendizagem para viver cada vez melhor com a hemofilia. Dá para fazer um monte de coisas interessantes: video-games, damas e xadrez, caminhar, trotar, bater uma bola com pai ou um amigo, ping pong,….ler….aprender…..nadar, dançar…

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. cazé says:

    great ideas…you are right. explaining takes much more timeand efforts but it is much more efficient when we educate our sons.

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