SOCORRO!  ou Dirigindo o próprio barco?

O que ajuda a se sentir mais confiante?

1. Saber explicar o que é hemofilia de uma maneira simples: ” quando eu me machuco e sangro, demoro mais tempo para parar de sangrar …e isso pode ser ruim para mim se eu não tomar o remédio rapidamente”

2. Aprender a fazer os exercícios físicos adequados para fortalecer e cuidar dos músculos e articulações do corpo. (Baixe federacao_brasileira_de_hemofilia_manual_miolo)

3. Não deixar de se instruir : na escola, colégio, ler livros interessantes, ver filmes inspiradores, visitar museus, conversar com amigos legais…….

S.O.S  or  Driving with confidence ??

Of course here I mean Driving in a metaphorical sense: be as autonomous as possible

by 1) like I always say try and practise a lot to explain hemophilia, a joint that is swollen, or the reason you are limping, in the most natural and clear way: the more natural you sound explaining even saying for example that you dont’ feel at ease with the fact that you have a target joint, or that you have to miss school sometimes, or just say“that you take more time than other people to clot properly… because something is missing in your blood.…. (I am repeating myself but i really believe in that)

2) Do and redo the physiotherapist exercises! your muscles have to be taking care off, as well as your joints…and only exercises done often can give good results and prevent more bleedings.

3) Inspire yourself with interesting READINGS, good movies, funny friends! music and art are the “guarantee for sanity” a great artist said (Louise Bourgeois)

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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