V like vein : ” One of the type of tubes carrying blood from all parts of the body to the heart….”

Finding  veins to puncture is very important : when babies, we know how difficult it is to find one able to receive the factor, we watch a baby suffering because his veins punctured several times. It is important to STOP trying if the vein isn’t appearing.

As a parent you can also ask for another nurse to try, or to wait to calm your baby and yourself again. This moment requires calmness and dedication to succeed. From everybody : from the parents, kid and from the staff involved.

The team comforts him and his family, try to be as assertive as it can to find the vein.

And sometimes the best solution in early year is to put a cateter (port-a-cath) facilitating this way the prophylaxis treatment (infusion of factor several times a week).

As years pass the vein and the patient are partners…little kids ages 4,sometimes almost 4… at our center are trained by Eliane Sandoval our Chief nurse to self-infuse that early! Ana and Nijane the other nurses in the team are part of the project too. Our center work for an early self-management; it is a challenge.

V como viagem :” do latim viaticum que significa provisões para ir longe….ato de ir de um a outro lugar relativamente afastados…”

Nos congressos de hemofilia sempre encontro cada vez mais pais, jovens e não tão jovens portadores da disfunção, que aproveitam a ocasião para participar ativamente, assistindo e dando aos palestrantes seus pareceres.

Isto me motiva a buscar e a caprichar na escolha das palavras para explicar o que eu quero dizer de uma maneira simples e me colocando nos seus lugares. Se eu tivesse um filho com hemofilia eu gostaría de ouvir coisas claras , idéias para lidar melhor com a disfunção e material didático e psicológico para facilitar a aprendizagem. Gostaria de “viajar” em sugestões e projetos que deram certo em outros centros, procuraría inspirações….

Agora sabemos que , quem tem hemofilia, pode viajar, carregando suas doses de fator consigo, ficando assim independente e responsável. Boa viagem!

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

3 responses »

  1. Sue Massey says:

    Nice writing style. I look forward to reading more in the future.

  2. Ana says:

    Oi!!

    Frederica adorei as fotos e estou muito feliz por vc viu parabéns pelo sucesso hahahahahahahahahahahaha!!!!!!!!!!!………….

  3. Ana says:

    Estou aguardando minha foto no seu blog viu Frederica cd achei que já tinha brincadeirinha nem tem foto minha né Fred.

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