Last July in Kyoto the International Advisory Board of HERO initiative and the support and sponsor of Novo Nordisk A/S launched 3 posters explaining the 3 phases of the work. A lot is being done right now in different part of the world….a lot is to be done in different part of the world too! We, Iorio, Queirol, Forsight and Cassis on behalf  of the IAB have the pleasure to present this to you. CLICK and Download 🙂


Julho passado fui para Kioto  no congresso ISTH; lá apresentamos os 3 posters do projeto HERO! Vale a pena o quanto foi feito, o quanto se está neste exato momento realizando em diferentes países e, o quanto ainda está por se fazer! Tudo sempre com seriedade e alegria para  dar o melhor da nossa experiência para a comunidade das pessoas e familias que vivem com hemofilia. Convido a todos a fazer o download no endereço acima!

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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