Look at Gui’s face : now he is happy!And his dad too! last past weeks were difficult with delicate issues t all for us the team to deal  and the family: training for infusion of factor at home and vaccination time, then the fact that he hasn’t a good venous access, the pain,…facts that we are together to  give the best and  appropriate care. His father presence was very crucial for him, to be with the son and share his feelings with me and finding solutions…good moments.

Gui é muito engraçado e alegre! agora está rindo a beça…más 2 semanas atrás o clima estava tenso para ele, e a sua familia: questões sobre vacina e tomar fator, o acesso venoso dele não é bom…e o papai ficou muito preocupado. Tentamos e conseguimos entre todos entender o que se fará para melhor atender as necessidades do Gui. A familia receberá o treinamento de infusão domiciliar e assim ele poderá fazer a profilaxia que precisa. Aos poucos e com um pai que está tão presente, é tudo de bom.

Outra coisa , Gui escolheu a carta 23 do Hemoação como aquela que ele mais gosta (como eu!!! dançar :)) Another important joyful detail: he loves to dance!!

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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