November…these past 4 months have been intense for me. I wanted to post so many things but I couldn´t find the right images or words. But, I was always feeling doing the things I love; working with the world of hemophilia is still challenging and a source of joy.

After more than 17 years in contact, I feel blessed to be part of a team at the hospital, of so many families and people who managed their lives having hemophilia.

I have met new and continue to meet other professionals committed and passionate about what they do! which is great…I feel part of a big beautiful web.

SO, just to share my latest participations in 2 projects i cherrish:

1) i have been working with some colleagues on project HERO (Hemophilia Experiences Results and Opportunities) where we did a final draft of the Protocol and Questionnaire on psychosocial issues related to people with hemophilia A, B and inhibitors. Now we are waiting to be approved by the whole members of the international advisory board. If somebody wants to know more about the project go to Novo Nordisk site, or google Hero project/ Novo Nordisk.

2) Since Wednesday i am at the hospital das Clínicas where i work with a team of Brazilian and Canadian professionals on the Cross Cultural Validation of  the CHO-KLAT ( Canadian Hemophilia Outcomes for Kids Life Assesment Tool) quality of life questionnaire.

It is so important to dedicate time and will to adapt a tool to each culture: trying to find the best way to express things!


 

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s