This time we discussed  about decisions like management of the “ddu” (dosis domiciliar única) or (first home self-infusion dosis):  knowing how they body functions , responds after some  outdoor activities, prevention is fundamental. It  is not only used on demand …  choices are made and they respond to the multidisciplinary team. “Responsibility” is the main characteristic of adulthood.

Another topic was WHEN TO TALK AND HOW …TO THE GIRLS WHEN STARTING TO DATE, ABOUT HEMOPHILIA!

Interesting: they were  2 clear opinions: talk about it quickly or wait to give time for the relation to show its face: if it is just a flirtation or something deeper, like falling in love.

Eucides, César, Edson and Clovis

(missing but present by mails: Fabio, Everton and Jozine who were working and Bruno  also traveling at work

ELES têm UMA SURPRESA PARA O DIA 17 DE ABRIL!!! SECRETO…

Conversamos sobre o uso da DDU ou seja esta dose é para que seja usada para prevenir as sequelas que a demora no tratamento de uma hemorragia provoca: tomou a primeira dose: sarou! (mais rápido)

e isso depende também muito do criteerio responsável de cada um deles.

OUTRO TEMA ; que alegra qualquer um…os relacionamentos claaaro!

quando falar e como para a garota dos sonhos se tem hemofilia..

na primeira? na …? falar ou não e para quê? muito interessantes colocações dos rapazes; sempre com humor e não enseguida, dependerá da intensidade do envolvimento.



About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. Arthur says:

    je crois que tu devrais enregistrer ces réunions en vidéo, les publier (YouTube) et mètre un lien a partir de ton blog.

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