One of the participant, César told us  that when he was a kid his mom used to called him “onça pintada” , little jaguar, because of all his blueish spots…bruises all over the body! So , with humour another participant Clovis who draws very well since kid, proposed to make a cartoon of him! we laughed a lot and remembered how it is important for a hemophiliac to play, to move and even having bruises but to feel alive! and because they have platelets enough they clot well for little bumps!

QUANDO PEQUENO CéSAR NOS CONTOU QUE A MÃE DELE 

CHAMAVA ELE DE “ONÇA PINTADA” DE TANTOS ROXOS REDONDINHOS ELE TINHA PELO CORPO!!

RIMOS DISSO E, CLOVIS OUTRO DOS PARTICIPANTES DO GRUPO SANGRILA SE OFERECEU (ELE é muito bom desenhando ! ) PARA FAZER UMA CARICATURA, MOSTRANDO TB QUE PEQUENOS CORTES E HEMATOMAS SÃO PARTE DA VIDA DE UMA CRIANÇA

E QUE NÃO PRECISA PARAR DE BRINCAR E DESFRUTAR  A VIDA.

Tendo as plaquetas o hemofílico coagula bem para machucados pequenos.


About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. limewire says:

    lol nice story bro.

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