Today Saturday 27th of March 010: the boys are now adults and they want to meet once a month in my office to form a Social network group:

SANGRILÁ! our name… (next meeting sat. 10/4/010)

Hoje foi a primeira reunião do grupo de jovens adultos no consultório…vamos criar uma rede social!

A idéia é que eles possam se entrosar, ajudarse uns aos outros dando dicas de trabalho, trocas de experiências e claro levar a vida com bom humor de sempre!

I am very happy to announce that. We are taking the example of who are doing this so beautifully. The young adults want to gather and help each other…share informations  with other hemophiliacs in Sao Paulo  and of course with Brazilian good humor or  “bom ASTRAL” like we say here! more will come up soon…as I told them ..i am only a facilitator. Eu serei a facilitadora proporcionando o espaço e meu carinho de sempre.  Vem muito por aí!!! para começar não achei o cabo para descarregar as fotos…;( somente esta para divulgar por enquanto: Mr. César, 24 anos.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

2 responses »

  1. Van says:


    Olha só:
    1) The legend:
    From Wikipedia, the free encyclopedia
    For other uses, see Shangri-La (disambiguation).
    Shangri-La is a fictional place described in the 1933 novel Lost Horizon by British author James Hilton. In the book, “Shangri-La” is a mystical, harmonious valley, gently guided from alamasery, enclosed in the western end of the Kunlun Mountains. Shangri-La has become synonymous with any earthly paradise but particularly a mythical Himalayan utopia — a permanently happy land, isolated from the outside world. In the novel Lost Horizon, the people who live at Shangri-La are almost immortal, living years beyond the normal lifespan and only very slowly aging in appearance. The word also evokes the imagery of exoticism of the Orient. In the ancient Tibetan scriptures, existence of 7 such places are mentioned as Nghe-Beyul Khimpalung. One of such places is mentioned to be situated somewhere in the Makalu-Barun region.[1]

    2) O trocadilho:
    Sangrila sans grilar.

    3) É sonoro, en portugais et em francês. Soa a sangue.

  2. frederica says:

    SANGRILÁ! it is accepted and very most well come as the name of our young adult group.
    Também “sem grilo” (in Portuguese), “sans griller” de soucis, de peines (in French) , Shangrila a land where people can renew themselves by the good vibes of the place but also by the source of care and love for each other!
    Sang (blood) 4

    thank you Van

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