After all theses travels  AND MEETING and remembering all the young people with hemophilia in many places of the world…I picked up this old drawing of a young teenager (now adult) at my center.

Their message : “HEMOPHILIA CAN SAVE, I can myself with

hemophilia save people.!” 🙂

I have talked to many young people in the Jordan third CAMP and I found that they have this spirit too:

“WE CAN DO , WE CAN HELP OTHERS…IT IS NOT ALWAYS ABOUT OUR PROBLEMS, OUR LIMITATIONS!”

This drawing is their VOICE too: “LET US BE MEN, let us show you that we can live and give too!”

SALAAM ALEIKOM YA chabbab -el-serou ! Bravo leikom!

—————————————————–

O grito de um jovem com hemofilia quando criança: a rede que salva!

salva ele mesmo (quando coagula direitinho com o fator) e a rede imaginária do avião que salva outras pessas!

Rodei o mundo e falei com muitos, estive com eles, : quem tem uma disfunção quer AJUDAR, SENTIR-SE PARTE DA SOCIEDADE, SER DIGNO E DIGNIFICAR QUEM ESTA DE SEU LADO.

E digo mais: a rede, é a REDE DE NOSSO TRABALHO NA REDE DA INTERNET TAMBÉM!!!

UNIDOS COMO AGORA OS MENINOS DA jORDANIA QUEREM SER , ACHAMOS UM NOME PARA O GRUPO:

“CHABAB -EL SEROU” = “OS JOVENS DA MONTANHA CHAMADA EL SEROU”

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

2 responses »

  1. rubi says:

    o menino está salvando uma menina….achei fofo.
    acho legal trabalhar em grupo, é mais divertido.

  2. Carina says:

    Aplausos para o seu blog! Uma grata surpresa!! Que estes jovens sejam verdadeiras “cabras montanhesas”…
    E você, tudo bem?

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