A story from last year in March where usually, Henrique 5, is calm, cooperative with the nurses to participate in his self-infusion of factor VIII…but today he was crying and crying out and loud saying that it would hurt, hurt…he was afraid, he needed to take the factor..but “didn’t feel like taking it”.

These changes of moods and feelings toward a familiar situation are common in early ages and we, as care agents and parents, must be comprehensive and patient.

I tried to talk to him and other kids who were there told him that it was ok, not to be afraid. I stayed with him and watching crying…he received the proper treatment. Somedays I feel I can’t do much, somedays are worst than others…..

**********************                       *************************************                ***********************

Uma história do ano passado em Março : Henrique, 5 anos estava no centro  o outro dia com seu pai  Vandeí  para tomar fator. Não parava de chorar, soluçar no colo do paizinho…nem queria conversa, só repetía: “vai doer, vai doer…não quero..”

Ele é normalmente colaborador, não chora e participa ativamente na sua auto-infusão! o que aconteceu então esse dia? regrediu?

É  muito importante  que pais e profissionais da saúde saibam que, nessa faixa etária, as crianças oscilam muito no humor e na sua disposição para fazer  (ou re-fazer) coisas que normalmente fazem . Temos que ser compreensíveis e pacientes com os pequenos.

Aquele dia, por mais que tentei tirá-lo do mêdo, fzendo minhas brincadeiras, por mais que outros meninos vieram falar com ele….nada adiantou muito. Continuava querendo ir para casa e simplesmente, por ele, não faría infusão nenhuma. Mais , precisava do fator para sarar mais rápido e fiquei perto dele na hora, e as enfermeiras cuidaram com carinho.

Tem dias que são mais diffíceis que outros!!

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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