Eliana  was  26 , married, with hemophilia B.  She wrote this message knowing that she had to treat her liver attacked by the HCV (virus of hepatites C)…it´s a message of hope and courage. Quoting: “people with hemophilia have  to be very  patient. People with hemophilia B never give up!”

March: she would be 29 years old.
I just want to tell you a part of her life story: During the treatment she discovered that she was pregnant. Her little daughter was borned pre-mature but survived and is well…Eliana almost 2 years after Victoria birth , died of liver cancer on the 15 of September 2006.
eliana.jpg

I saw Hellen-Victoria when she was born, the strenght of this little being holding my hand, I have been with Eliana, by her side…I thought she could live for many more years and be with her family…but she left this planet earth . I miss her smile, her sense of humour…goodbye my friend

Eliana tinha 26 anos, casada, trabalhava tomando conta de uma bomboniere e tinha hemofilia B. Ela escreveu esta mensagem no seu desenho sabendo que estava precisando de tratamento para o vírus da hepatite C : uma mensagem de coragem e de esperança ” Os pacientes com hemofilia têm que ter muita paciência. As pessoas com hemofilia B nunca desistam”.

Março: ela tería 28 anos. Quero que vocês conheçam um pouco da história dela: durante o tratamento para hepatite ela percebeu que estava grávida. Foi adiante e teve a Hellen Vitória (o nome diz tudo!) que nasceu prematura e sobreviveu e está crescendo forte e firme.

Lembro de ter segurado várias vezes a sua maozinha pequenininha e acompanhei Eliana durante o processo.

Depois do aniversário de 2 anos de Vitória, Eliana estava com dores muito fortes…o cancer tinha tomado conta do fígado….e ela faleceu no dia 15 de Setembro de 2006.

Achei que ela pudesse viver muitos e muitos mais anos…más não deu. Ela partiu e meu coração dói…más também re-faço a idéia dela rindo, com um senso de humor bem peculiar dela e de todas as pessoas que sabem que não vão ficar por muito tempo…re-faço minha a idéia da morte e sei que se bem partiu do planeta terra, ela continua viva na imagem que tenho dela.  Aos deuses!

eliana.jpg

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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