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At your centre of hemophilia, we will help you to understand why is important to take your infusion of Factor.

No centro de hemofilia, a equipe te ajudará a entender porque é importante que você tome o seu fator.

En el centro de hemofilia, el equipo te ayudará a entender el porque de tomar el factor.

Au centre nous t ‘aiderons a comprendre  pourquoi c’ est important que tu prennes ton facteur.
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COMO AJUDAR? HOW TO HELP?

1. Não transforme a ida ao centro de hemofilia num “castigo”, porque a criança se machucou. Ao contrário: é UM PASSEIO!

1. Going to the center of hemophilia must never  be a “punishment” because he hurt himself. On the contrary it will be a visit to a friendly place.

2. Tomar o fator é rápidamente feito com a colaboração tanto da familia, do pequeno paciente e da enfermeira, por isso prepararse com uma pomada anestésica antes , falar o que vão fazer depois para curtir um filme, um jogo em casa é importante.

2. Infusion of factor 8 or 9 isn’t a long process if everybody (family member, the little patient and nurse) participate with patience, and efficiency. For exemple putting a bit of  local anestesia, or telling him that afterwards they watch a movie, play a video game is important to show that this is a stress that will pass.

3. Brincar de médico, fazendo de conta que injeta o fator, achar a veia, colocar torniquete etc é importante para se familiarizar com os objetos desde cedo  e também para saber que ele vai sentir uma picada.Picture 14

3. Doing role playing games is important to make him lose fear of needles, or being punctured. He can be the nurse, the mother or father will receive the factor, it is a game… that gives him the sensation of control and familiarity.


About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. iggy says:

    ‘e aquela agulha grande? eu não gosto de injeção

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