I am a consultant volunteer for the WFH and this is on the left Assad Affar who is Director for all the projects for Middle East and Africa, I have travelled to Egypt and Jordan with his coaching. And with him is Dr El Kiaby

hematologist, a volunteer as well at the Wfh.Picture 4We discussed at the Global Forum what would be the plans for next year in the psychosocial area for Egypt, Syria maybe and Jordan.DSC01311my friend Gordon Clark on his new vehicle, he is with the WFH since for ever and an active member of the board.

DSC01342

Angela Forsight, is physiotherapist and a volunteer at the Wfh like me. She was in the team of Novo Nordisk proposal to discuss e analize new approaches for many countries in treatment for hemophiliacs. Although most people who had hemophilia gor inhibitors too, the focus was to imagine and criate for all the population with hemophilia. Next to me was Matt who is an active member of the hemophiliac community and participates in workshops and other activities I’ll ask him to tell me.DSC01316

And here the big new team!!! a mix of  different profissionals from the hemophilia area, pharmaceutical industry of Novo Nordisk and fondation Paul, organizers of the event from The Wright PerspectiveRobin and Hellen(on the left), and members of the hemophiliac representatives Kerry in red :), and 4 gentlemen named by Matt, Andrea(extreme right side), Sid (with hat) and Werner(smiling in the back behind my friend and mignonne collegue Eliane .

And an interesting fellow who works a lot in criating program of treatment with people with diabetes next Kery in red is Soren)

I’ll have to check for more names…BUT THAT EVENING WAS  just sweet and gentle.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. […] Read more:  In Montreal different tribes united for the wellfare of the big hemophilia family […]

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