P as Prevention: ” avoid something to happen”

Living with hemophilia can be easier if we help families and young patients to prevent

self exposure to dangers, or low self esteem or emotional problems by

1. LEARNING ABOUT BODY FUNCTIONS LIKE CLOTTING, HEALING

2. LEARNING HOW TO FEEL THE BODY IN MOVEMENT AND PROMOTE SELF-CONFIDENCE

3. ENCOURAGING THE CHILD, SIBLINGS AND PARENTS TO EXPRESS THEIR THOUGHTS AND FEELINGS ABOUT HEMOPHILIA

4. SEEKING TOGETHER AS A TEAM FOR ADAPTATIONS AND SOLUTIONS FOR EACH FAMILY ‘ s SITUATION.

P como PREVENÇÃO: ” impedir algo de acontecer”

Podemos viver e con-viver com a hemofilia de uma maneira mais fácil prevenindo: a instalação de problemas emocionais na criança e nos pais como sentimentos de baixa auto-estima, falta de ânimo, passividade e exposição desnecessária a perigos.

DE QUÉ MANEIRA?

1. ENSINANDO DESDE CÊDO SOBRE O FUNCIONAMENTO INTERNO DO CORPO, NO CASO: MACHUCADOS, COAGULAÇãO, IMPORTÂNCIA DO FATOR , DA FISIOTERAPIA…

2. ENSINANDO A SENTIR O PRÓPRIO CORPO EM MOVIMENTO, CADA PASSO, CADA PISADA AUMENTANDO ASSÍM A AUTO-CONFIANÇA do menino.

3. ENCORAJANDO A EXPRESSÃO DOS SENTIMENTOS E IDÉIAS A RESPEITO DA HEMOFILIA DE TODOS NA FAMÍLIA.

4. PROCURAR JUNTOS SOLUÇÕES E ADAPTAÇÕES A SEREM FEITAS PARA RESOLVER OS PROBLEMAS PSICO-SOCIAIS DE CADA FAMÍLIA.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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