“State of wanting to learn or know about something; curiosity”

“advantage, benefit: look after, protect, safeguard one’s own interests”

I found this description in the dictionary fascinating because the same word with these 2 significations can apply to young people with hemophilia! 🙂

At the same time that parents and care givers will incentive the boys to find activities that are interesting and source of pleasure, they will have to chose more carefully in order to adjust their desires to their actual condition.

Just to give an example: a young boy had the dream to start a small school of socker, although he had 14 and mild hemophilia A, he didn’t had a good physical condition (muscles and flexibility, resistance as well) so he needed first to recognize that and go under a preparation with his physiotherapist first! it was going to be a PROJECT !<a

I como


“período da vida onde meninos e meninas de pouca idade têm de brincar, aprender, ser amadas para amar e outras cositas mais”

sem muito mais palavras, acho que as imagens falam por sí só 🙂

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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