Durante o acantonamento Alexandre, que tem hemofilia A leve (mais de 5% de fator VIII no sangue) foi uma novidade para o resto dos jovens que tinham hemofilia  grave. Eles ríam e ficavam brincando  que Alexandre “era falsificado, do Paraguai!!” 🙂  porque não sangrava tanto quanto eles durante o ano!

Todos foram aprendendo a conhecer mais sobre as DIFERENÇAS DENTRO DE UMA MESMA DISFUNÇÃO DA COAGULAÇÃO… E AO FINAL DOS 2 DIAS NINGUÉM SE MACHUCOU, NINGUEM PASSOU MAL! AO CONTRÁRIO SE DIVERTIRAM MUITO.acantonamento-08-0051 Alexandre and Vik my dear collegue social worker 🙂

In that beautiful place, differences appeared when the other fellows with all severe Hemophilia discovered that Alexandre was a mild  hemophiliac. They teased him and called him false -hemophiliac (everything with good humour and fun of course), and with a little bit of envy because he didn´t bleed as much as them during the year…

It was a good opportunity to learn about DIFFERENCES IN A SAME DISORDER. And at the end of the camp, everybody , mild and severe, could enjoy the stay without getting hurt or having a serious bleed. Only Wgner, 13, had to take factor 8 to prevent a start of heat and swolleness in an elbow.acantonamento-08-006

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

2 responses »

  1. This view from the place was so relaxing..

  2. Ricardo says:

    Eu lembro dos comentários dos meninos e a presença do Alexandre lá foi mais uma lição para todos nós! Mesmo entre pessoas com o mesmo problema, ninguém é igual a ninguém e cada um deve respeitar os limites e o espaço dos outros.

    Achei muito bom quando ele se impôs e explicou pra cada um porque ele é hemofílico, sem ligar para piadinhas ou comentários de ninguém.

    Ricardo

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