OBAY ABUKWAIK participated in the youth camp in Amman. I asked him to be my correspondant , a bridge between myself and the other members of the workshop! He is 19 years old, he studies Biotechnology and Genetic Engeneering….he is very much involved in all what has to do with improvement in  treatment for hemophilia  in general. He has  moderate hemophilia B himself.

He likes swimming and watching TV. His dream is to have factor IX at home for a quick treatment and consequently more spare time to do other activities! 🙂

OBAY tem hemofilia B moderada e ele aceitou ser meu correspondente com o que acontece com os outros rapazes do workshop em que participei em Agosto em Amman.

Ele fala e escreve bem em Inglês , estuda Biotecnologia e Engenharía Genética. Ele anseia por progressos na área do tratamento para hemofilia. Ele gostaria de ter fator em casa para poder administrar quando necessário.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. obay says:

    hi again
    i forgot to say that i like to heare from you
    iam waiting your posts at :


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s