>The conversation started with :
WHAT DO YOU SEE WHEN YOU LOOK AT YOURSELF IN THE MIRROR?
An man, a patient, a student, husband…all of these?
What are your opinion about hemophilia? how do you explain it to others? or you don´t talk about it?

UM TÓPICO INAUGURAL FOI:
O que você vê quando se olha no espelho? um homem com projetos, um namorado, marido, trabalhador, estudante, paciente, doente,….?
Qual é sua opinião á respeito da Hemofilia? o que é a hemofilia para tí? de qué maneira explicaría para outros sobre tua condição? ou não falaría dela? ou para quem? e quando?

Most of them don´t talk about hemophilia but don´t feel that it is a subject that rule their life. However when it came to relationship and future like getting married , some social and local customs aroused:
there are 2 types of wedding
: taklidy and gheir taklidy.
Taklidi is more traditional and means that the couple doesn´t know each other before marriage. The parents of both find a suitable spouse and if they see each other and like their appearence. ..it is done.

So when I asked each one of them what kind of marriage they would like: the majority said “gheir taklidy” which would means to get to know each other before engagement. In this way they would be able to introduce hemophilia in the talk, and show their beloved that they are able to be autonomous and responsible about their own treatment. They would like to live a normal relationship based on mutual trust and love.

—————-

O tema que engatou com “conhece-te a ti mesmo” foi : relacionamentos (namoro e casamento)>

Claro que cada país tem seus costumes e rituais, e na Jordania existem 2 tipos de casamentos: o “Taklidy” que significa o casamento tradicional onde os pais apresentam para o filho uma jovem de “boa familia” que podería ser uma possível esposa> Se , ao olhar um para o outro na casa da noiva, eles consentem, o casamento acontece nos próximos meses. Neste caso não tem namoro, nem sair com ela para passear ou conversar.

O outro casamento é o “gheir taklidy” ou seja o não tradicional, ou moderno. é o caso da Rainha e do Rei do pais que se conheceram na faculdade e se amaram para depois casarem.

A maioría dos meninos  escolheram o tipo moderno! que bom! desta forma , eles poderíam apresentar também a hemofilia do jeito deles, mostrando que não é um bicho de sete cabeças, que podem trabalhar, ser responsável mesmo se as vezes terão sangramentos. A idéia é se conhecer mutuamente, se amar para poder viver junto formando um lar.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

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