“Jack did it! Yesterday before his baseball game Jack tried self-infusion again and got the vein. Under Allison’s tutelage, Jack has been working on self-infusion since he got home from camp a week ago and yesterday was THE DAY.

We are so proud of him. This is a huge step toward full self-sufficiency and ownership of his hemophilia care.

Congratulations Jack!!

Keep it up! “

THESE ARE THE WORDS OF HIS PARENTS AT http://www.redbleed.blogspot.com! BRAVO for another autonomous

and courageous boy!

Jack conseguiu auto-infundir o fator pela primeira vez sozinho e foi uma CELEBRAÇÃO para todos em casa! seus pais escrevem no blog www.redbleed.blogspot.com, que estão muito orgulhosos dele! é mais um passo até a autonomía e a responsabilidade pelo seu tratamento.

PARABÉNS!!! e okbaal kol el awlaad el alam! que isso possa acontecer para todos os meninos do mundo que têm hemofilia!(esse é meu desejo)

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, where I added new topics like Inhibitors and their different treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com Now, HERO is in Brazil! soon the results will be available. 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 24, Rubi 18 and Iggy 15) and i love to jogg, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

One response »

  1. Frederica,

    Thank you for your kind words and recognizing Jack’s big accomplishment!

    Patrick

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