My 2 aims of this first social worker’s workshop were:
1) to desmystify the idea that it is hard to be an care giver in hemophilia
2) to start a little “suitcase” full of simple but useful informations to start working with the world of the ideas and emotions in a person and family with the blood clotting disorder. (what a looong sentence!) 🙂
a) imagine you are explaining that your son has hemophilia to a person that doesn’t have a clue about medical, genes, reading …. (simple as simple it can be)
b) confidence comes with practising, simplicity and clearness in what we do and say
c) checking informations with the group (definitions, explanations of genetic and hereditary issues, school and routine activities for the PWH, education at home)
ps: I put a picture of myself as a child because I like to maintain my “inner child” always near me when I have to be with people, it helps me to relax, have fun and be curious….like a child is.