After the Pain, life always returns/ “Depois da dor sempre vem a vida”

This drawing was made by a teenager with severe hemophilia A, when asked to express what he felt about his hemophilia. He expressed a common sensation:
Pain, felt from several hemarthroses he endured.Pain was  a sensation he had to face repeatedly.

The tree with red fruits, which also seem to be drops of blood,represent his hope. Because although it is  blood it is a tree with life in it. The Pain is illustrated by the black, dry and empty tree.depois-da-dor.jpg

Psychologist Irene Fuchs In Buenos Aires Argentina(http://www.hemofiliarte.com.ar) has a wonderful work with relaxation techniques. Relaxing is a state of mind, spirit and body that can be learned. And when a person relaxes, pain can be dealt with and lived in a different perspective.
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Este desenho foi feito por um jovem com hemofilia A grave, quando expressou seus sentimentos a respeito da hemofilia.
Dor, foi a sensação mais difícil para encarar depois de inúmeras hemartroses. A esperança de poder lidar com a dor de uma maneira mais legal aparece no desenho da árvores com frutas, que também parecem gotas de sangue. Más a Dor é vivida como seca, nua. Uma árvore preta e sem vida.

A psicóloga Irene Fuchs em Buenos Aires, (www.hemofiliarte.com.ar) tem realizado um trabalho maravilhoso com técnicas de relaxamentos nos pacientes com hemofilia. Relaxarse é um estado de espirito, de corpo que pode se alcançar com a prática.
Focar en sí mesmo, na sua propria capacidade de encarar a dor e de lidar com ela proporciona uma sensação real de independência.

The opposites : Flowing and Clotting for ever

Our blood is always flowing and clotting, and in this way repairing little or bigger bleedings in our body.

A constant balance is required.

Like in our life, we are always “flowing” or trying to…like on a dancefloor, or when ideas come and flow over a screen or a piece of paper…

and we are “clotting” too when we give form to a project, when we finally decide to “do” something….

It´s a metaphor that i like to use in my life….

When to flow and when to clot….that is A question !

ps: this drawing is made by Cloves a teenager I met at the hospital and was part of a group therapy for 7 years with my coordination.

He was 14 when he did it.

After studying Blood characteristics and clotting he draw what represented to him the opposites in blood.

RE FLEXION, REFLET, REFLEXO….i look in-me, je me regarde, olho para dentro

AND WHAT I see?

I am a mother of 2 adolescent girls; one is slowly getting out the phase (18 and a half) and the other one starting to be in it (12 and a half)…

and I look at them and re view my own adolescence….we are all mirrors to each other. WHAT i DO, say, enjoy, cry, think  is a big lake where

its waters show them images of a woman, a mother…but they know that the waters own a depth, a mistery, a story that is not yet revealed.

THIS IS THE WAY I LOOK AT  Ru and Da: A MISTERY, an unfinished story, an endless one…..

How is maternity to you? how is paternity to you daddies? enjoy and endure the journey, because both are part of it.

When i am with young men,adolescents who have HEMOPHILIA, the blood clotting disorder is a DETAIL…not more important than communicating with him about his doubts, his passions, his visions for the present/future…

NARCISUS plunged into the waters because he couldn’t recognize that he was the reflexion…he thought that the image on the waters was ANOTHER PERSON! adolescence is about starting to have consciousness of  things and aspects that aren’t easy to recognized as ours…

Dramatization of the clotting process :) by kids at the hemophilia center/ Dramatização ao vivo do processo da coagulação pelos meninos no centro de hemofilia

foto final do coágulo com Clôves representando  a proteína Von Willebrand que junta as plaquetas (os outros meninos) e a rede de fibrina encima deles! (era uma rede de pescar) COAGULOU!!!COAGULOU! gritaram no final….!

This is how ended a short Dramatization that some kids and I at the hospital did few years ago.

The play was about ” what happens inside your body when you BLEED ?”

So after some minutes the kids were the Platelets, the clotting factors represented by a Net and …the CLOT was formed! this is a “real” CLOT with the fibrin net and red cells!

This is how it really looks in our blood…

ONCE YOU LIVE A PLATELET, BY ROLE PLAYING, YOU NEVER FORGET HOW IT WORKS…dramatizing is useful in teaching complex issues like blood clotting process.

In Hemophilia A and B, the problem during the clotting process happens….

in this phase: the clot takes too much time card-15.jpg to be made and when it is formed it´s still weak, it doesn´t hold back efficiently the blood from coming out.

so, the patient has to infuse a clotting protein that is missing (Factor VII or IX, depending on what hemophilia he has)card-18.jpg

Now, yes! the clot is formed and strong enough to heal correctly.