After the Pain, life always returns/ “Depois da dor sempre vem a vida”

This drawing was made by a teenager with severe hemophilia A, when asked to express what he felt about his hemophilia. He expressed a common sensation:
Pain, felt from several hemarthroses he endured.Pain was  a sensation he had to face repeatedly.

The tree with red fruits, which also seem to be drops of blood,represent his hope. Because although it is  blood it is a tree with life in it. The Pain is illustrated by the black, dry and empty tree.depois-da-dor.jpg

Psychologist Irene Fuchs In Buenos Aires Argentina(http://www.hemofiliarte.com.ar) has a wonderful work with relaxation techniques. Relaxing is a state of mind, spirit and body that can be learned. And when a person relaxes, pain can be dealt with and lived in a different perspective.
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Este desenho foi feito por um jovem com hemofilia A grave, quando expressou seus sentimentos a respeito da hemofilia.
Dor, foi a sensação mais difícil para encarar depois de inúmeras hemartroses. A esperança de poder lidar com a dor de uma maneira mais legal aparece no desenho da árvores com frutas, que também parecem gotas de sangue. Más a Dor é vivida como seca, nua. Uma árvore preta e sem vida.

A psicóloga Irene Fuchs em Buenos Aires, (www.hemofiliarte.com.ar) tem realizado um trabalho maravilhoso com técnicas de relaxamentos nos pacientes com hemofilia. Relaxarse é um estado de espirito, de corpo que pode se alcançar com a prática.
Focar en sí mesmo, na sua propria capacidade de encarar a dor e de lidar com ela proporciona uma sensação real de independência.

SUPER HEMO

THIS IS THE YOUNGSTERS´HERO : Super HEMO pg-111.jpg

He would have a FIBRIN NET to catch the bad guys and bad girls!!!

he would have a PLATELETGUN to shoot and help the clotting process (first step to clot is the platelet plug !)

of wounded people, also a loooooooots of Factor VIII AND IX in his belt. (In Brazil, we have some problems with the Factor supply sometimes).

As you see , he has protection for knees and elbows….he is prepared for ACTION!

Dramatization of the clotting process (noon…:) answering

pg-107.jpg

This is how ended a short Dramatization that some kids and I at the hospital did few years ago.

The play was about ” what happens inside your body when you BLEED ?”

So after some minutes the kids were the Platelest, the factors of clotting represented by a Net and …the CLOT was formed! this is a CLOT with the fibren net and red cells!

This is how it really looks in our blood…

In Hemophilia A and B, the problem during the clotting process happens….

in this phase: the clot takes too much time card-15.jpg to be made and when it is formed it´s still weak, it doesn´t hold back efficiently the blood from coming out.

so, the patient has to infuse a clotting protein that is missing (Factor VII or IX, depending on what hemophilia he has)card-18.jpg

Now, yes! the clot is formed and strong enough to heal correctly.

The opposites : Flowing and Clotting for ever

Our blood is always flowing and clotting, and in this way repairing little or bigger bleedings in our body.

A constant balance is required.

Like in our life, we are always “flowing” or trying to…like on a dancefloor, or when ideas come and flow over a screen or a piece of paper…

and we are “clotting” too when we give form to a project, when we finally decide to “do” something….

It´s a metaphor that i like to use in my life….

When to flow and when to clot….that is A question !

ps: this drawing is made by Cloves a teenager I met at the hospital and was part of a group therapy for 7 years under my coordination.

He was 14 when he did it.

After studying Blood characteristics and clotting he draw what represented to him the opposites in blood.