Igor ´s challenge / O desafio de Igor

Igor is very funny…he is with us at the Hemophilia Center of Sao paulo  from the day he was borned.

At first he was afraid of needles , natural… and then little by little he was trained by our nurse  Eliane and he got more confidence by playing with the Flash cards HEMOACTION (this card is number 27) and he smiled when I asked him: “ah ..Igor is in this phase now??” NOWADAYS…THINGS  are smoother..he likes to come to the Center and we wellcome him! Bravo Igor.:)

No começo Igor tinha muito medo de tudo, claro que de agulhas também. Ficava muito grudado na mamãe Sylvia…ele é muito engraçado, esperto…e vai para escolinha! Fomos fazendo nosso trabalho de conscientização e aprendizagem la no centro de hemofilia: com a Eliane e a equipe ele foi se acostumando as agulhas de auto-infusão de fator e aos poucos…se soltando e ficando feliz. Parabéns!

Some days are tough…..Alguns dias são mais difíceis que outros…

Usually, Henrique 5, is calm, cooperative with the nurses to participate in his self-infusion of factor VIII…but today he was crying and crying out and loud saying that it would hurt, hurt…he was afraid, he needed to take the factor..but “didn’t feel like taking it”.

These changes of moods and feelings toward a familiar situation are common in early ages and we, as care agents and parents, must be comprehensive and patient.

I tried to talk to him and other kids who were there told him that it was ok, not to be afraid. I stayed with him and watching crying…he received the proper treatment. Somedays I feel I can’t do much, somedays are worst than others…..

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Henrique, 5 anos estava no centro  o outro dia com seu pai  Vandeí  para tomar fator. Não parava de chorar, soluçar no colo do paizinho…nem queria conversa, só repetía: “vai doer, vai doer…não quero..”

Ele é normalmente colaborador, não chora e participa ativamente na sua auto-infusão! o que aconteceu então esse dia? regrediu?

É  muito importante  que pais e profissionais da saúde saibam que, nessa faixa etária, as crianças oscilam muito no humor e na sua disposição para fazer  (ou re-fazer) coisas que normalmente fazem . Temos que ser compreensíveis e pacientes com os pequenos.

Aquele dia, por mais que tentei tirá-lo do mêdo, fzendo minhas brincadeiras, por mais que outros meninos vieram falar com ele….nada adiantou muito. Continuava querendo ir para casa e simplesmente, por ele, não faría infusão nenhuma. Mais , precisava do fator para sarar mais rápido e fiquei perto dele na hora, e as enfermeiras cuidaram com carinho.

Tem dias que são mais diffíceis que outros!!

AUTO-INFUSÃO contra O MÊDO DAS AGULHAS/ SELF-INFUSION vs FEAR OF NEEDLES

Each time I have to make some blood tests or receive a shot…i must confess that I have a flashback of my childhood where they used to grab me and force me after catching me running! sorry…maybe that;s whay I like to PREVENT and explain everything so carefully, with details with kids> I like showing them the stuff we use at the center, describe the sensations….

and it worked well for the children with hemophilia, with mine and with me!

I really believe that when people try (sometimes with the best intentions) to hide informations, or try to trick a child to face something not pleasant…it is worse!

I am talking about prevention even with babies!! babies can’t understand flashcards but they understand the voice and how it sounds. The confort, the compassion, sharing your baby’s fear and telling him that soon it will be over.

I remember reading years ago Kelly ’s wonderful book “raising a child with hemophilia” and belief that no baby should receive more than few trys to find the vein…it is better to stop and start later or with another nurse.

WE WANT AS CARE AGENTS THAT OUR BOYS LEARN AS FAST AS POSSIBLE TO INFUSE FACTOR OR TO SEEK FOR THE PROPER TREATMENT AT TIME. That is why we have to work with this kind of preventive attitudes from the first step at our center.

bye my webfriends!