Archive for the ‘EMOTIONAL PROPHYLAXIS’ Category

H como HUMOR H like Home therapy

April 7, 2008

H como HUMOR :

” Líquido contido num corpo organizado, umidade”

“boa disposição do espírito, veia cômica…”

NADA COMO O BOM HUMOR ( de nadar…sacou?? :) :)

É interessante perceber que o Humor tem a ver com o que FLUI, um líquido. Quando estamos de bom humor as tarefas ficam mais leves, as relações interpessoais são gostosas e o ambiente de trabalho fica agradável.

Por mais que esteja sofrendo, com dor física ou moral, lembre de que se ri, se tem humor, as dores não ficam tão fortes. O corpo fica menos TENSO , mais RELAXADO = menos sofrimento.

H like HOME THERAPY :” home=place where one lives and feel comfortable” and “Therapy= any treatment designed to relieve or cure an illness or disability”

Luan receives his factor replacement therapy prepared by his mom. She has the first factor dosis at home to apply if her son has a bleeding. Then she will come to the hospital for re-avaliation.

A family who has the factor at home feels more comfortable with the treatment and has the tranquility to relieve faster the pain of a bleeding. Also , by infusing quickly the factor, the chances of joint problems are minor.

Palavras importantes

April 4, 2008

APRENDER SOBRE HEMOFILIA Symbol of the slowness in clotting now solved temporarely by the infusion of factor VIII or IX!

FISIOTERAPIAimages.jpeg

fotos-hemofilia-grupo-dos-pequenos-029.jpgATIVIDADES ESPORTIVAS: CAMINHAR, NADAR …para começar

REEDUCAÇÃO ALIMENTAR : images-5.jpegpara Manter um peso bom

card-17.jpg APRENDER A FAZER AUTO-INFUSÃO

TER UMA VIDA SOCIAL LEGALimages-6.jpeg


” A ” like AFRAID ” A ” como AUTO-INFUSÃO

March 24, 2008

A

Afraid= worried or anxious about something…

One of the moment that can frightens a kid , generally babies and kids until their 7 is when they are afraid of needles (some adults are still afraid too! :) ) One tip is to you spread some anaestesic ointment in the place where you are going to receive the needle minutes before.

Don’t be too afraid of needles, you need to learn how to do your replacement factor therapy as soon as you can…it is much easier after that. You can be independant!! card-27.jpg card-27.jpg

A

Auto-infusão:

Tão importante ! agora saiba que no nosso centro de hemofilia , a enfermeira Eliane e sua equipe formam crianças desde a idade de 5 anos para se auto-infundir o fator!card-17.jpg esta é a Eliane fotos-da-hemoflia-turquia-e-blog-007.jpg

Agressividade nas crianças…e na hemofilia?/Agressiveness in children…what about hemophilia?

March 17, 2008

fotos-vida-selvagem-002.jpgfotos-vida-selvagem-002.jpg

Acho esta imagem muito poderosa: os felinos atacam sem piedade porque faz parte do ciclo da vida, morte e sobrevivência.

Nós humanos e os pequenos humanos temos um lado agressivo também, não tanto como os felinos ! más , quantas vezes vemos os meninos brincarem de video games nas lutas e matanças virtuais, nas aventuras perigosas que eles tramam no seus computadores e jogos eletrõnicos.

Faz parte deixar as crianças extravasarem seu lado agressivo nos jogos. E, quando se trata de um menino com hemofilia, tem que fornecer esta oportunidade de :

- expressar verbalmente a raiva que ele sente as vezes

-ensinar a maneira socialmente aceita de resolver conflitos, sem ter que brigar com as mãos e os pés!

- permitir que ele jogue porque na FANTASIA ele é TUDO QUE ELE precisa ser.

E porque na vida de todos os dias, ele não poderá jogar por exemplo partidas de futebol, rugby ou karatê. Então, a búsqueda de um equilíbrio é necessário para um bom desenvolvimento de sua personalidade como um TODO.

FANTASY AND IMAGINATION help the child with severe hemophilia or with some physical limitation, to compensate in a healthy way his need to express his agressive side. In general, boys adore video games and movies where blood, fights and physical combat skills are happening!

Agressiveness is part of our wild and savage side and it doesn´t have always to do with hostile feelings. It has to do with a natural energy that requires attention.

We can´t repress it all the time: that´s why sportive activities are important for all kids. But when we deal with hemophilia, we notice that we have to find substitutes and find alternative sport activities that are adequate to each child situation.

At the end every kid must have fun and learn to manage his anger, or excitability in order to be a socially creative and adapted being .

UM COÁGULO comun e um coágulo na hemofilia / A regular CLOT and a clot in hemophilia

March 5, 2008

card-10.jpgcard-13.jpgcard-14.jpgcard-19.jpgcard-09.jpg OK!IN HEMOPHILIA THE FIBRIN NET OR CLOT IS WEAK AND DELAYED
NA HEMOFILIA A REDE DE FIBRINA OU COÁGULO é DEMORADO E FRACO.
card-14.jpgcard-15.jpg

MUST TAKE INFUSION OF FACTOR
DEVE INFUNDIR FATOR DE COAGULAÇÃOcard-17.jpg card-16.jpg card-19.jpgcard-09.jpg OK!

Emotional prophylaxis

March 1, 2008

In countries like ours (Brazil) and most countries of the globe (you have Africa, Asia…just to mention continents)…the situation of having Factor a go go is not a reality! sorry for the term a go go but it is a reality, a hard one: people with hemophilia can´t rely on having Factor VIII or IX as a prophylaxis.

To be on Prophylaxis means to receive Factor infusion when you are not bleeding yet !( it is called Replacement therapy too) it means that you can elevate the % of factor in your blood and therefore be transform your “severe” hemophilia (with less than 1% of factor) to a moderate hemophilia or a mild hemophilia! (more than 5%) .card-17.jpg

Of course this , in tems of quality of life is a huge difference! kids with the possibility of receiving factor 3 times a week can prevent bleedings, can practice more sportive activities etc…

Ok, but here we don´t have this prophylaxis for all our children yet! Actually some kids receive prophylaxis as a treatment . That´s a big step and a good start..

So, I came with the idea of Emotional prophylaxis!!!

EMOTIONAL Prophylaxis is about : let´s do more with less!

it´s about facing reality and transform it to a better one. How? well< I never believed that if you have more money, or more clothes , you are happier. It can help though :)

I mean, people are not only a body or a vein which will receive factor. He is a person, a student, a son, somebody with dreams, with desires, with limitations and possibilities that have to be considered, elaborated and empowered. A young boy with or without hemophilia will grow, will go to school, will want to work, to date… (and I hope so…because I´ve seen parents who don´t imagine that for their sons). Knowing their hemophilia better, learning how to cope with its characteristics, prepare their personality in a more flexible one. The person with hemophilia will see himself more than just one thing: a man with a physical disability. He will see himself as a Man first.

As a psychotherapist I offer shots of consciousness, care and courage. This is emotional prophylaxis.