Q like Question: ” form of expression in speech or writing that requests an answer from somebody”
This word has probably a link with another word called “quest”? which means the search for knowledge or happiness.
A child will always seek for answers: why can’t I play soccer? why do I bleed so often and have to go to the hospital? what’s hemophilia? and in these questions parents may experience difficulties in explaining. Even if you don’t know HOW to explain, you may tell your son:” I don’t really know how to explain yet, but I will search for you the answer….let’s do it together…let’s learn why you better choose another activity and not soccer!”…
Q como Questionar :” perguntar, duvidar de alguma decisão ou atitude”
As crianças sempre fazem perguntas e questionam as regras dos pais.
Na hemofilia é importante saber explicar Porquê não pode praticar por exemplo futebol, ou basquete.
A resposta do Não, não pode ser somente porque ele tem hemofilia. É Importante explicar o qué acontece dentro de seu corpo quando ele se expõe à atividades que vão lhe provocar batidas na canela, ou um chute na coxa por outro colega! E MUITO IMPORTANTE OFERECER OUTRAS OPÇÕES DE ATIVIDADES .
Então, se o jovem sabe que DEMORA MESMO para ”parar ou estancar o sangramento” e que precisa avisar ao responsável que se ele se feriu, ele vai tomar o fator rapidamente. Deoois ele irá aprender a escolher a melhor atividade para si. Os pais têm que aceitar que os filhos as vezes se rebelam, expressam sua frustração, e fiquem tristes. Faz parte da aceitação e aprendizagem para viver cada vez melhor com a hemofilia. Dá para fazer um monte de coisas interessantes: video-games, damas e xadrez, caminhar, trotar, bater uma bola com pai ou um amigo, ping pong,….ler….aprender…..nadar, dançar…
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About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 18 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com
2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) an approved article with other colleagues for Haemophilia Journal to be published soon...(will tell after the title)
5) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families"
On a more personal level i have 3 three great not anymore children :) Danaê 20, Rubi 14 and Iggy 11) and i love to jogg, doing pilates, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)
great ideas…you are right. explaining takes much more timeand efforts but it is much more efficient when we educate our sons.