siblings: our first partners / o- a irmã(o): o/ a primeiro(a) sócio/a! ;)
By frederica cassis
Siblings in a family with hemophilia have their space too!

And it is a Must. A brother or a sister must get involved in hemophilia in the way that they have to know about the disfunction as much as their brother. They don’t have hemophilia which means that they must have their life and activities that are suitable for them. If they like rugby they ‘ll do rugby, play soccer , practice boxe or play with his brother who has hemophilia in a gentle way with a video game!
What I want to say here is that the fact that one child is allowed to practice an activity and the other one isn’t , can be considered by the family as a good oportunity to work different educational topics as:
differences between people, generosity, tolerance, coping with feelings like envy, jealousy, anger, frustration, creativity…
Let’s realize that who has a family with brothers and sisters learn quicker to share, to negotiate, to discuss issues and find solutions.
All that because a child with hemophilia has partners to deal with in order to get from the parents what they want and need!
let’s remember also that siblings unite “against” the parents sometimes! and it is wise from the parents to let this happen.

Ter uma irmã ou um irmão é a primeira experiência de sociedade para alguém dentro de uma familia. A importância dada ao fato de ter um irmão é independente dele ter ou não uma disfunção!
O irmão é o primeiro companheiro diferente de mim mesmo que tem suas peculiaridades, suas qualidades e defeitos…e tenho que dividir com ele ou ela o afeto de meus pais
Se tem hemofilia, ele terá que se adaptar as atividades que lhe são permitidas e benéficas…e o outro irmão que não tem hemofilia deverá também traçar seu caminho e realizar tudo o que puder! pode ser difícil para os pais, ver as diferenças entre os filhos..más CORAGEM, somente permitindo que cada um deles se expresse e se desenvolva COMO PODE E DEVE, somente assím, nós pais podemos criar seres independentes e fortes espiritualmente.
ACEITEMOS as limitações para, a partir delas, fluir nas profundezas da vida nesta terra.
Paz a todos.
Tags: siblings hemophilia, YOUNG MEN'S STORIES
This entry was posted on November 11, 2009 at 3:20 am and is filed under children with hemophilia, siblings and hemophilia. You can follow any responses to this entry through the RSS 2.0 feed.
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July 23, 2008 at 10:50 pm |
Absolutely! Partly, we try to involve the Toddles in his brother’s infusions, and partly we just say – hey, you are more than the hemophilia kid’s brother. You are yourself.
July 27, 2008 at 8:16 pm |
I am glad the short post made sense to your beliefs…thank you for leaving your response.
bye bye
frederica